Hi Rachel..like everyone said you have found a good place for info,support and a shoulder. This is a terrible disease but you just have to learn to life with it now.It can be tuff at times so keep us informed on yr progress.
Hi Rachel..like everyone said you have found a good place for info,support and a shoulder. This is a terrible disease but you just have to learn to life with it now.It can be tuff at times so keep us informed on yr progress.
Hello Rachel, welcome to the forum. I second what everyone else has already said, WG is a terrible disease, one that you just have to learn to live with. But, this forum has some excellent and very knowledgeable members that are always willing to help with suggestions and advise.
Good luck.
Rudi K
Hi Rachel,
I'm newly diagnosed too. Around 3 1/2 weeks. My pulmonologist mentioned Wegeners the first time he saw my chest scan. But it took time to get diagnosed. I had 3 negative ANCA tests and lung tissue was inconclusive. It is a relief to finally know. This site is great. People who experienced what you have and not just a doctor telling you.
Good Luck.
Live well.
Victoria
Glad you found us and happy your are finally in good hands.
"Never go to a doctor whose office plants have died." - Erma Bombeck
Welcome Rachel! Glad you found us, lots of info on this site.
Nicole
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