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Thread: New Member

  1. #11
    Join Date
    Nov 2011
    Location
    Ohio
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    Hi Rachel..like everyone said you have found a good place for info,support and a shoulder. This is a terrible disease but you just have to learn to life with it now.It can be tuff at times so keep us informed on yr progress.

  2. #12
    Join Date
    May 2011
    Location
    Socorro, TX (suburb of El Paso, TX)
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    Hello Rachel, welcome to the forum. I second what everyone else has already said, WG is a terrible disease, one that you just have to learn to live with. But, this forum has some excellent and very knowledgeable members that are always willing to help with suggestions and advise.
    Good luck.
    Rudi K

  3. #13
    Join Date
    Jan 2013
    Location
    Boston Massachusetts
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    Hi Rachel,
    I'm newly diagnosed too. Around 3 1/2 weeks. My pulmonologist mentioned Wegeners the first time he saw my chest scan. But it took time to get diagnosed. I had 3 negative ANCA tests and lung tissue was inconclusive. It is a relief to finally know. This site is great. People who experienced what you have and not just a doctor telling you.
    Good Luck.
    Live well.
    Victoria

  4. #14
    Join Date
    Oct 2011
    Location
    Nashville, TN
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    Glad you found us and happy your are finally in good hands.
    "Never go to a doctor whose office plants have died." - Erma Bombeck

  5. #15
    Join Date
    Jan 2011
    Location
    Orange County, Southern California
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    Welcome Rachel! Glad you found us, lots of info on this site.
    Nicole

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