Prednisone and loopy eyes

[carriej22]

Hi Folks,

Im not sure if it's already been discussed (I could not find it, but that doesn't mean it isn't there!) but my eyes have been loopy. I'm waiting to get in to see the eye specialist (yay, add that to the list) but I'm not sure what I should be doing. My family doc thinks its the pred. My eyes are watery at times, dry at others, sludgy at other times... But mostly just blurry. I feel like I can't open them wide enough or something. I'm trying not to rub at them but they're driving me bonkers. I can see, don't get me wrong... It's just something ain't right! Currently tapering the pred, on 60mg ... I didn't have this problem on the higher doses. Appearance wise they look fine, no redness or anything like when I was first diagnosed. Just weirdness. Anyone else have a similar problem?

[Dirty Don]

Try focusing on a little white ball about 1 1/4 inches in diameter and hitting it into a 4" wide hole at 300+ yards away!! LOL...it's the pred...as my doses have gone down, my game has improved...so be it!

[carriej22]

Good to know. Today they seem fine, I find it gets worse at night when I'm getting sleepy.

All these drugs are going to make me pull my hair out!

[Dirty Don]

All these drugs are going to make me pull my hair out!

Don't do that...the drugs will do it for you! LOL...mtx made mine fall out in clumps, doc put me on triple dose of folic acid, all came back...whew!

[annekat]

My watery eyes have improved with getting off Cytoxan, lowering the pred, getting used to Mexthotrexate, and getting better in general, so it's hard to say which it was. I still have some other lingering loopiness, difficulty focusing sometimes, etc. which could be the pred or just that i haven't had an eye exam for my glasses prescription for a long time. I also have sensitivity to light which I think is the pred or other drugs. Whatever the case, I think yours will get better with time, but good thing you are seeing an eye specialist.

[carriej22]

Luckily I have not lost much hair, just a bit of thinning.. Noticing a little more on my brushes, etc But I have quite a bit of hair. I also work in a salon.. so I'm sure I could get hooked up with a dandy wig if worst came to worst. I have only been on 25mg injections of MTX for 6 weeks..So Im a little nervous what it's going to do in the future but I guess we will see.

Dropping down to 50mg of pred on Tuesday.. This is exciting to me, LOL.

[greenjanet]

i was looking through wikipedia wegeners granulomatosis and it describes eye problems have a look .... hows your marriage going young love its
gorgeous xx janet

[Psyborg]

Heard back from the eye doctor yesterday. I have something called Central Serous in addition to the cataract. It's basically a tiny blister under the retina, and should go away over time. Reading up it's caused by cortosteroids. Anyway that explains the weird black dot in my vision the way the cataract explained the blur on that side.

[pberggren1]

that totally sucks. I sure hope it does get better.

I know when my retina started bleeding I e-mailed everything to Dr. Garrity at Mayo for a second opinion. He agreed with my doc here. You might want to do the same.

[Sangye]

Heard back from the eye doctor yesterday. I have something called Central Serous in addition to the cataract. It's basically a tiny blister under the retina, and should go away over time. Reading up it's caused by cortosteroids. Anyway that explains the weird black dot in my vision the way the cataract explained the blur on that side.

Whew! Glad to hear it will resolve on its own.