Out of Remission - going for 2nd round of Rituxan infusions

**Meredith** · 05-30-2012, 06:07 AM

After having a wonderful year after taking Rituxan I ended up in the hospital last week thinking I had galbladder problems due to the pain in my side. The next day I knew it was wegener's because my eye got red. Went to the specialist and he gave me an IV of steroids. Will start the Rituxan treatment tomorrow (only 2 infusions instead of 4 this time). Just extremely tired and taking 30mg of preds daily in the morning. Makes me awfully nervous. We are suppose to leave for Disney on June 13th, which is the day of my second treatment. Wondered if anyone had problems with the 2nd rounds of infusions with Rituxan. Not sure if I should cancel trip.

**Meredith** · 05-30-2012, 06:08 AM

One last thing - the doctor did say that I had had good results with the Rituxan (would have been a year this past March/April) but will now start getting them every 9 months to prevent damage.

**pberggren1** · 05-30-2012, 08:43 AM

I hope the rtx kicks ass again for you.

**Dryhill** · 05-30-2012, 11:43 AM

Sorry to hear that you are no longer in remission and like Phil, I hope the rtx puts you back in remission quickly.

Jim

**alexciasmom** · 05-31-2012, 05:48 AM

our thoughts and prayers are with you....

**freakyschizogirl** · 06-02-2012, 06:36 PM

Originally Posted by Meredith

Not sure if I should cancel trip.

It really depends on you and how the RTX reacts with you. I went bowling after one round of RTX but i was knocked out the day after.

**pberggren1** · 06-02-2012, 06:52 PM

Originally Posted by freakyschizogirl

It really depends on you and how the RTX reacts with you. I went bowling after one round of RTX but i was knocked out the day after.

But unlike the bowling pins you didn't have someone to set you up again.

**Dryhill** · 06-03-2012, 11:24 AM

Originally Posted by freakyschizogirl

It really depends on you and how the RTX reacts with you. I went bowling after one round of RTX but i was knocked out the day after.

Originally Posted by pberggren1

But unlike the bowling pins you didn't have someone to set you up again.

Sam and Phil, is this the WG equivelent to the Lupus spoon therory? So instead of how many spoons one has to get through the day it is now how many bowling pins are still standing.

Jim