I'm so sorry AJ has to go through this. I was totally deaf for a year so I can kinda relate. The pain must be crazy too. I was deaf for a year but now have cochlear implants. This may be an option for AJ depending on his status.
Phil Berggren, dx 2003
Hello Kim, sorry to read about your daughter, she is so young to have to face all this, it is so unfair on her. I hope things get better for her with the right treatment and doctors. Congratulations on your new baby, you have a lot going on right now and hope you are managing to get some rest yourself after giving birth, getting up for night feeds and with all the worry you must have for your daughter at this time.
Hi there sending some love to you and your daughter . tough times mate All the best and please keep in contact of your progress xx
Diagnosed March 2001 ... WG Involvement - Ears . Sinus ( saddle nose) , eye ( blind Left )
currently on 5 mg Pred , Myfortex 6x360mg/d , Fosamax 70mg .
Kim,
Welcome to the forum. I'm so sorry to read about your daughter, getting dx at such a young age. This is a great place for any info you need. I wish your daughter and family all the best with her tx's and care.
Jana
Welcome to the forum, my daughter is 12 as well so I can only imagine what you are going through. I hope you find plenty of answers to your questions.
~ Bob
Hello Kim. Thanks for posting your story. I sent you a private message/messages about being a fellow Vandy patient. I hope you, your daughter and your family are doing well. Good luck and you are in the right place for sure.
Katrina- Nashville, TN
"Never go to a doctor whose office plants have died." - Erma Bombeck
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