discontinued Cytoxan

[rkm001]

Mother just yesterday was taken off the Cytoxan due to her white cell blood count being extremely low. She is still on 50 mg of prednisone. Does any one know about the side effects from the Cytoxan, could this be causing her extreme weakness and lack of appetite?

[JennyT]

i've been taking off cytocan for a while because off white cell count. Then when it went up i am back on it but a lower dose.
For myself i can't say the weakness or appetite part. My weakness had a lot to do with hemoglobin as well. did they check her kidney functions. Had a couple of dialisys and plasma's done and then it went better.

good luck
Jenny T

[rkm001]

Mother has been on dialysis since diagnosis in March of this year. She goes 3 days a week.

[andrew]

A low white cell count could cause weakness. Not sure about the lack of appetite though, never had that problem Common thing to come off th cytoxan while the count comes back up then go on again perhaps at a lower dose as Jenny mentioned.

[rkm001]

Are there any other websites, that talk specifically about the symtoms after diagnosis and treatment?

[Jack]

A lot of your mother's problems could be due to the dialysis. I know that I did not tolerate it very well at all and felt permanently ill.

[andrew]

Are there any other websites, that talk specifically about the symtoms after diagnosis and treatment?

Try this one: Johns Hopkins Vasculitis Center Discusses Wegener's Granulomatosus Types of Vasculitis

And this one: Wegeners Granulomatosis

Both are good.