New member intro

[Freddie Graham]

Hi folks
Never knew this site existed but glad to find it.
First diagnosed with WG in 2001- relapse 2003 and at the moment its back again - that is how i found the site trawling around trying to find a support group. WG back with a vengance in eyes sinus and nose
Does this thing never give up ?
Hi again to all and good to find a site that knows what it is all about and will listen

Freddie
Northern Ireland

[Sangye]

Does this thing never give up ?

Sometimes I think if Wegs could talk it'd be saying the same thing about us.

Glad you're here, Freddie. Good times, bad times, we share them all.

[jola57]

Welcome Freddie. Its like a whack a mole, you whack one just to have another pop up .

[crackers]

hi freddie and welcome to our motley crew(now there's a good name for a band).sorry to here about your flare up but if you read the posts on here you'll find it's not uncommon.that's WG for you.just when you're sitting in the sun with a nice cool drink along come the clouds to rain all over you.
john.

[coffeelover]

Welcome Freddie! So sorry to hear about your relapse. I am in early diagnosis stage and hoping to go in remission soon. I hate to hear about relapses, but I know it is common.

Lisa coffeelover

[Doug]

I don't worry about things, but I try not to be blase about relapses. I like to think I'll be clever enough the second time around to realize in the early stages that I'm in relapse and get to the doctor. Though I still see my primary care doctor on a six-month schedule, have the usual blood and urine tests done each time, with an annual cANCA test unless I have concerns and ask for one earlier, I worry that I'll be stupid like the first episode, wandering around for 10 months in full-blown WG before I seek medical help. That was a sentence, eh!? For those of you who've had relapses, what advice do you have for those of us who have not? I know it's going to be common sense, but I'm so pigheaded sometimes, it's nice to have someone else say it.

[JennyT]

Hi everybody,
Is any of you on aranesp. any side affects?

[Doug]

Jenny- I copied a long list from one internet site and sent it to you. I'd suggest you check other sites for comparison. Anyone else who is interested in this drug, which is used for anaemia by stimulating blood cell production, should check the internet, too. Anyone who has used this drug, in the meantime, please tell us what your experience was. As with many drugs, the list of potential side effects was alarming and long, though most people never experience any of them!