Hi
I'm in hospital but changed from pred to dex a new steroid. Anyone ever heard of this. It makes me very thirsty. Meant to have less fluid retention problems associated.
Hi
I'm in hospital but changed from pred to dex a new steroid. Anyone ever heard of this. It makes me very thirsty. Meant to have less fluid retention problems associated.
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Oh no! Why are you admitted again?
I don't know what dexamethasone is.
I was on dex for about 3 weeks after brain surgery, then switched to cortef. I was told that dex was the preffered streoid for surgeons, but don't know why. I lost 18 pounds while in the ICU for 8 days, but not sure why. I was in sort of a coma for about 4 days, so that would explain part of it. Now that I think about it, I might have been on the dex for several weeks before being switched to cortef.
Wegener's (GPA )- Apr10, Granulomatous Hypophysitis - Apr10, Diaphragmatic Paralysis - Feb16, Bradycardia - Dec16, Fibromyalgia - 2017, Hypoparathyroidism - 2017. (my story)
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It's a replacement for pred apparently, less side effects. I'm in hospital with heart pain this time, waiting for an echo scan today. So tired and breathless all the time. Miss my family so much. X
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I'm sorry to hear this , I hope the Dex works for you
~ Bob
Hope they sort things soon DEE x
Aww, Gwenllian I remember how hard the hospital stays are on you. Hopefully this one will be a short one.
Feel better Gwen, sorry your having heart pain. They will figure it out, glad you getting it check out!
Sorry to hear you are in the hospital, get better soon!
Thanks guys, back home now I missed my family too much.
Still don't know what's really wrong, prob general WG hell.
The pain in my joints, ESP hips at night and morning ATM is absolutely unbearable. I can hardly stand the
Pain to get to the toilet at night. Had steroid injections, but bed rest seems to help most - although easier said than done with 3 little ones at home.
Sorry for the rant. Wish the pain would go away.
www.airway-stenosis-patients-association.com
Twitter @astenosis
facebook.com/airwaystenosispatientsassociation
Miss me, but let me go.
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