Thanks guys, I will continue to pursue a drug free goal, but I'm still quite a ways away from that, so no need to stress out about it right now (even though it bummed me out for a bit after the appointment - but a bunch of other great stuff came out of the appointment that trumped it). I totally trust my doc, she is a Weg/Vasculitis specialist and has worked at Mayo and with Dr. Specks. She told me that her opinion is based on what she has seen in her practice with her Wegs patients. I have some time still to solidify our relationship before I start challenging I'm still tapering pred (and she's conservative, so we're tapering 1mg per month - I'm at 13mg now)

Anna, I hope this clears up for you. You are a poster child in more ways than one. You're a total inspiration and I too hope to be able to pull off the achievements you have after dealing with this WG speed bump in my road of life. We'll chat on Skype.