VCRC Enrolling Participants for Genetic Study at 2 New Centers

**Sangye** · 06-03-2011, 02:58 AM

I got an email from the VCRC (Vasculitis Clinical Research Consortium) announcing that Mayo Clinic (Minn) and Johns Hopkins are now enrolling participants in the longitudinal genetic study. This has been an ongoing study that I think originated at Mt Sinai in Toronto.

Here's the info, with all the centers where you can participate. I was surprised to see a few of the locations that are on the list, so everyone please check it out even if you don't live near a major center.
Vasculitis Clinical Research Consortium - Take Action

Also, please consider registering with the VCRC (link at the bottom of that page).

**NicShaf** · 06-03-2011, 04:27 AM

I signed up for the VCRC. I wish they had more trials in the So Cal area...or the West Coast in general.

**renidrag** · 06-03-2011, 05:36 AM

Sangye: If I were to sign up at BU would my WG be treated or just monitered. I guess the question is do you think this would be like a total care package? I will sign up for the VCRC. And I applied at BU.
Dale

**Sangye** · 06-03-2011, 05:39 AM

I don't know if they require you to be a patient or if you can just go and submit a sample. I'd sure love to see you treated at BU, though.

**norcalian** · 06-03-2011, 06:30 AM

Yeah - there's not a whole lot going on with the West Coast. I signed up for the consortium, but I'm not sure if they can get my samples locally or not. Utah is the closest center.

**pberggren1** · 06-03-2011, 07:53 AM

I got the same e-mail.

Maybe I will ask my doc if I should contact them to see if I can participate.

**renidrag** · 06-03-2011, 08:22 AM

I sent an e-mail to BU and they already replied. I told them Dr. Stone at MGH was my Rheumatologist and to please not hold it against me. They are doing two studies, one just a blood DNA and one time visit. The other they called a Longitudinal Study and would require a visit every three months. I asked to be part of that because this could be my Insurance answer, I hope. Debbie is thrilled. Thank you so much for this information. See ? Another life touched today. Best to you
Dale

**Sangye** · 06-03-2011, 09:47 AM

Oh, that is SO cool Dale! I sure hope it works out.

**vdub** · 06-03-2011, 12:58 PM

I might be wrong, but I believe when you give one sample of dna for any VCRC study, then it goes to everyone in the consortium and is used in multiple studies. Believe I read that somewhere. I gave to Mt Sinai about 8 months ago, but regardless of that I signed the doc I got yesterday and sent it on to Salt Lake. I'll give them DNA in a couple weeks during my doc visit.