Rituximab Round Four

[Sangye]

I start another round of rtx tomorrow but I'm not looking forward to it. I just hope it works this time. I'm in awful shape right now and feel like my lungs are becoming more inflamed each day. I wish the rtx didn't completely flatten me for 6 weeks like it does. You guys who tolerate it well (and even have quick relief of Wegs symptoms!) are luckier than you can possibly know. It takes every ounce of courage I have to walk in that infusion clinic knowing how I'll feel within an hour, much less the coming weeks.

Well, it's 10:30 and I have to be up by 5:30. Goodnight all, I'll let you know how it goes tomorrow.

[gurinbasra]

Sangye, I do feel for you because I am one of those who does well and I pretty much had my first two when you did and yes, I am grateful that I feel mostly normal with only two infusions. Be strong enough just to get youself through it and I'll be sending some good strong vibes your way. I hope this one works for you! It's been hard reading about how you're still struggling and it's about time you got a break. Finger and toes and everything else is crossed - good luck.

[vdub]

Best of luck! Keep your computer handy and let us know how things go....

[Deanne Hull]

Best Wishes

[Thakator]

Sangye,
May you find unexpected peace on this day of dread. And kudos to you for boldly going forth to meet it. Ron

[kulharv]

b est of luck sangye!

[jane]

Hi,
am off for my next dose of Rit. on Friday. have to say it has been a miracle for me but I have to gut out the 6 weeks of feeling rubbish in order to get my life back. I find that once it kicks in I am mostly free from the worst symptoms - coughing, aches, sinus probs, backache, colitis etc. Thinking of you and just remember we are lucky to have this treatment. xx Jane

[NicShaf]

Hope you're feeling better, Sangye.

[Sangye]

Jane, you are one of a small percentage of people who also has this negative reaction to rtx for 6 weeks. I might be in more of a celebratory mood if I could actually get my life back in between treatments!

[Brooke]

Hi Sangye, I cant remember if I have asked you this before. If your B-Cells are gone from your first Rituxan Infusion, why would they do another round so quickly? It obviously must do something if they would do it so soon. My doc said I would do the Rituxan again once my B-Cells came back. I suppose if I was having major issues between rounds, they would do something....