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Thread: Just Diagnosed

  1. #71
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    I just tell people I am a Wegs specialist. I usually get some blank looking faces after that response.

    vdub, I know what you mean about a doc making a career out of Wegs. My doc certainly has. He has told me many times that my case is one of the most interesting he has ever seen and has seen over 1000 cases. I told him about Martas book idea and he said that is a very good idea and also said he is documenting my case once I get back into remission and hopefully off of pred and Imuran, probably 2 years or so.

    Mike, my two cousins around my age also have MS. One of them went to NY to have the liberation treatment and she is doing much better now. Has your daughter considered this treatment?
    Phil Berggren, dx 2003

  2. #72
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    If I were in good health I would love to tend to a stable of cars.
    Phil Berggren, dx 2003

  3. #73
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    Hey, I was at your hospital about a month ago! I was out at the Proving Grounds and had to get blood tests, so went to the yuma hospital. Had I only known. Next year maybe....

  4. #74
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    Drz,

    I prefer to refer to my status as "self-unemployed."

    Quote Originally Posted by drz View Post
    When people ask me what do you do referring to occupation, I tell them I am a Health Care Consumer which seems accurate given the time and effort I put into keeping appointments, getting meds, taking them correctly, managing my diabetes, doing routine lab work etc. I agree managing ones health seems to be nearly a full time job now and can't imagine trying to work besides. I admire those of you who can and imagine it must really be a struggle at times for many of you.
    J. Mike Milliorn, Santo Texas
    Diagnosed Jan. 2011
    at the Cleveland Clinic

  5. #75
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    PB,
    I will ask Megan what she knows about this. I am unfamiliar with it.

    Mike, my two cousins around my age also have MS. One of them went to NY to have the liberation treatment and she is doing much better now. Has your daughter considered this treatment?[/QUOTE]
    J. Mike Milliorn, Santo Texas
    Diagnosed Jan. 2011
    at the Cleveland Clinic

  6. #76
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    Rini, so glad it went well. If you have any questions about your recovery and what to expect, just ask. Don't forget to take deep breaths and cough. I know it hurts to cough. Make sure you eat a high fiber diet or take a stool softner if your on Pain pills like codiene....ect.

  7. #77
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    Quote Originally Posted by jmmilliorn View Post
    Drz,

    I prefer to refer to my status as "self-unemployed."
    I bet that gets you a lot of puzzled looks?

  8. #78
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    Quote Originally Posted by vdub View Post
    That is quite good! LOL
    I have also said I am a professional patient who helps support the health care industry. Boy would I love to have the money that has been spent on my health care

  9. #79
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    Quote Originally Posted by elephant View Post
    Rini, so glad it went well. If you have any questions about your recovery and what to expect, just ask. Don't forget to take deep breaths and cough. I know it hurts to cough. Make sure you eat a high fiber diet or take a stool softner if your on Pain pills like codiene....ect.

    UGH! i totally could not come home until I pooped and let me tell you I am not happy about all that...I am now on apple juice I have supper girlly coughs but I was given a breathing toy so I am working on it. I finally got my mom to take pictures so I could c all this junk, most are of the tubes but that grosses me out so I'll just post the cool one. I'm healing up, if not painfully. oddly the pain is more in the unmarked spot or my arm. It is cool to hear more about everyone.stapled.jpg
    Experience is the only way to survive. <3 Rini Orange

  10. #80
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    Wow, Rini that shark bit you pretty bad! Glad you got to go home.

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