found a semi famous wegners patient...

[delorisdoe]

Her name is Wendy shanker. Google it. she has been in tv shows, she is a comedian and she is a published author. whe was On talk shows etc.

[ArlaMo]

I read her book recently "Are You My Guru?" Very interesting.

[NicShaf]

That's awesome! Was her book good? It sounds interesting.

[delorisdoe]

I am going to order the first two from the library. should be interesting to read about dealing with wg in a humorous point

[Chris G]

Uh oh, I was scared for a second. I read a Q & A she did, and when asked how she's gotten healthy, she said she stopped taking all her Wegs meds, and suddenly was healthier. But then in the next sentence, she says it was Rituxan that has made all the difference for her. She said: "I started taking this new drug, Rituxan, that was a lot gentler, a lot more targeted and that has been a real success story."

Well done, Leigh! Now we have a famous face for our little group of weggies (lol - I know how you love that word!!)

[delorisdoe]

Uh oh, I was scared for a second. I read a Q & A she did, and when asked how she's gotten healthy, she said she stopped taking all her Wegs meds, and suddenly was healthier. But then in the next sentence, she says it was Rituxan that has made all the difference for her. She said: "I started taking this new drug, Rituxan, that was a lot gentler, a lot more targeted and that has been a real success story."

Well done, Leigh! Now we have a famous face for our little group of weggies (lol - I know how you love that word!!)

I was going to make that the title..."a famous weggie" but i did not want to contradict myself.

I did ponder not mentioning her as I also read she about her beliefs on natural drugs but i felt okay when she mention rtx

[JanW]

I have emailed back and forth with her extensively (she and I share a ENT, and a neighbor's sister is a good friend), and she wrote an article for Self or Shape or one of those magazines about how after the first time she went into remission she went into deep denial when she started becoming symptomatic again and wound up in absolutely horrible condition. I have no idea of where her head is at now, but it is definitely a cautionary tale (I read it shortly after diagnosis and was horrified).

[chrisTIn@]

Her name is Wendy shanker. Google it.

I did.
With this Youtube result...
YouTube - Are You My Guru?, Wendy Shanker - 9780451229946

Madonna is certainly not my guru, allthough I like some of her songs very much.
Still I found the things that Wendy says about stress, meditation and being in the moment quite interesting.
(I'm also the kind of person that looks at her watch after ten seconds...)

[Kimbangu]

I did.
With this Youtube result...
YouTube - Are You My Guru?, Wendy Shanker - 9780451229946

Madonna is certainly not my guru, allthough I like some of her songs very much.
Still I found the things that Wendy says about stress, meditation and being in the moment quite interesting.
(I'm also the kind of person that looks at her watch after ten seconds...)

It's fascinating that in the first few seconds of that video she says "doctors couldn't help me?". Then later she says the main thing that saved her was medication. I wish she had gone into more detail of the financial and medical insurance aspects of her diagnosis, and concentrated just a little bit less on Madonna. Surely a successful, vivacious young woman in NY could afford the best medical treatments? You can't help liking her though. And I do agree that stress is one of the biggest things we need to avoid.

[delorisdoe]

I finished the book and I really liked it. The madonna references did not bother me if they had I would have stopped reading it.