gah! pred leg cramps

[NicoleB]

oddly enough my leg cramps subsided after my 3rd day on 20mg. i havnt been hungry either, which is a plus. however, the fullness in my ears has gotten a bit worse again, after 2 days of feeling mostly gone. i'm still on 20mg. i did some digging around and seems that ear nose throat problems can happen in Hashimotos too, which i did test positive for. i hope i find out whats going on soon! i definatly have hashimotos symptoms. i just cant find a lot of reliable info as to weather burning nose/sinuses and ear pain are part of that disease too. i find people talking on hashi message boards who complain about similiar issues, but cant find any real info.

[Chris G]

Glad to hear your cramps are better! But I was also hoping the pred would be easing your symptoms by now. What's next for you? Do you have an appointment with a specialist?

[NicoleB]

i have an ENT appointment this week. i felt like the first 2 days, i had lots of relief in the pain, and even a reduction in the ringing, though not total elimination of the pressure. now 3 days later, and i havnt tapered yet, i feel like the pressure has gotten a bit worse again, though not so much the pain. this is all so early, and i'm sure you have to let things "heal" a bit. we'll see what happens. my last doc appointment seemed to think my issue was in the eustacian tubes because my ears looked fine from what he oculd see. i totally believe that. i guess you cant really see the tubes from the outside, so i dont know how they'd check that problem at the doctors. i'm 90% sure it will be another "i dont think its wegeners, but we'll run the test anyway". and since my symptoms are so mild and localized, im not sure i'll EVER have a positive blood test. nothing even looks abnormal enough to biopsy at the moment. i just dont want to go deaf or damage my poor ears in the waiting game.

[freakyschizogirl]

i had leg cramps for the first few days on 60mg but these did wear off. Today i am tapering down from 7.5 to 5mg and my legs are achy again! Might have something to do with the 5 hour train hourney i've just done....

[pberggren1]

5 hour train? Where did you go?

[freakyschizogirl]

To Gt Yarmouth in the UK, but tis 3 hour car journey. Since i had no one to drive me i had to go 5 hours and took 3 different trains, not to mention the 40 min wait between trains. Home sweet Home, lol!

[pberggren1]

That is a long trip and a long day for sure. I have never been on a train and would love to come to Europe to ride on the best trains in the world some day.

[shadow]

Great news today my lymphcytes are comming down. Cytoxan is doing its work.

[shadow]

My ent checked the eustacian tubes by using a flexable scope through nose. I have had tubes in my bad ear helped with hearing no longer any pain. Good luck.

[freakyschizogirl]

That is a long trip and a long day for sure. I have never been on a train and would love to come to Europe to ride on the best trains in the world some day.

Well they were hardly the best trains in Europe but had some nice scenery rushing past!