Still a relative newcomer to this, so am hoping you guys can offer me some advice.
Two weeks ago my nephrologist reduced my dosage of cyclophoshamide as he was concerned my lymphocyte count was falling too low. A week later (having taken the reduced dose for a week) it had fallen further. As a result I was taken off it for last week. Had appointment today and he has reintroduced an even lower dose, and will review on results of bloods that were also taken today.
My query is though, during that week off, I had a huge increase in crusting, most of it blood stained and had a nosebleed today. The consultant said the cyclophoshamide would still be kicking around in my system and that it should have it under control - but the sinus stuff was one of my main presenting symptoms.
Is blood stained crusting and nosebleed par for the course with WEGS that will just come and go intermitently, or should I be concerned? Is it possible for these symptoms to present so quickly after a week off the ctx? How do I know when to be concerned? Aaargh. . .I'm confused!!!!
It has also been suggested that I may need to have injections to give my bone marrow a bit of a kick up the backside - anyone got any experience of this?
Such basic questions I know to all you gurus out there! Just so glad I found this site to be able to ask the basics. Jules
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