It is a very long story but I will start with a condensed version. My Daughter(30) got sick, flue like symptoms, around the 1st week in March, 2010. While in the ER her right foot went numb(foot drop) within a little while, the numbness turned to extreme pain(neuropathy. The numbness and pain traveled up her leg to just above her knee and and stayed. It wasn't long until her right hand did the same thing. My daughter was in agonizing pain and there wasn't a thing that I could do.*Fast forward* She was admitted and the tests began, They finally got her semi comfortable with heavy duty pain meds. Tests, tests and more tests, every test was abnormal. Her spleen, liver, kidney and lymph nodes were all enlarged. They though that she had Lymphoma. She had a bone maro biopsy on her birthday, it was negative. I have to give them credit, they never gave up on her. She had so many Specialists, I could never list them all. The next test was to be a biopsy of a lymph node on the back of her kidney. A Rheumatologist checked right before that was done and ordered his own bunch of tests. Within a couple of days he had a diagnosis(well at least a partial one) By this time she had been in the hospital for over a month. Another strange symptom was that she would spike a temp of 103 every night at 7:00pm. You could set your clock by it(Symptom of Still's Disease). He diagnosed her with ANCA Associated vasculitis, Mononeuritis Multiplex,HTN,Vasculitic Neuropathy, and Peptic Ulcer Disease,and Still's disease.
The Wegener's Disease diagnosis came later though the symptoms had been there for a long time.

Part II Later