I didn't think it was possible not to have Wegener's anymore. You can just achieve remission. I think your Rheumy may have been speaking out of ...um....another part of his body
What was he basing his assertion on? ANCA? If so, it's possible to have an ok ANCA reading and still have WG. Not common, but possible.
It is also possible that you may be in remission but have associated issues caused by the WG. It sounds like he wasn't very clear huh?
Definitely see your GP as soon as you can.
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Diagnosed March 2003.
Currently but not permanetly residing in Canberra, Australia.
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