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When the rheumy says you don't have Wegeners anymore but you still feel awful!!
At my recent visit to my rheumatologitst he leant back in the chair and said your tests show that you do not have Wegeners anymore! I then asked "well how come I feel so awful so often and my legs wobble and my feet are still numb". He then said "well that must be something else'. I think I'll bounce it all off my GP in the early New Year.
Other Wegeners - has this happened to you??????. At what point do they say you are well and how can that be when you are still feeling awful most of the time.
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