At my recent visit to my rheumatologitst he leant back in the chair and said your tests show that you do not have Wegeners anymore! I then asked "well how come I feel so awful so often and my legs wobble and my feet are still numb". He then said "well that must be something else'. I think I'll bounce it all off my GP in the early New Year.
Other Wegeners - has this happened to you??????. At what point do they say you are well and how can that be when you are still feeling awful most of the time.