Hello to All:

We are new to this site and we have some questions we would like to put out to other WG sufferers.

My husband was diagnosised with Limited WG two years ago. As of last month he is in remission and we are both very thankful for that. Although we were excited to hear this news Rick has been suffering from extreme headaches that are 24/7. We have been to 2 top Neurologists and 1 of them that specialize in headaches and because Rick doesn't fit into a headache profile they have told us that there is nothing they can do. He has tried different drugs with no success and because they are constant and with no triggers they are not sure where to go with this problem.

Is there anyone else out there that is dealing with this same debilitating pain day in and day out?
Also we were checking out the Mayo Clinic in Rochester, Minneapolis. They have a clinical trial going on for WG. Has anyone else been involved with this particular study. We are from B.C. and so we were wanting to exhaust everything Canadian first if we can before heading south of the border because of the financial expense that can occur.

We would appreciate any feed back.

Toughfight