Congratulations with your appointment Mark!
Very interesting conversation on this thread.
Especially the parts about acceptance, fear, denial and s on.
We all have to deal with that, one way or another.
I very much agree with Jan W., who says that even if a ´top guy´is treating you, there still can be symtoms of WG.
I´m treated by a top guy, he says my WG is ´light´, and that I´m 'in remission'.
Still my remission is not totally symptom-free.
In my opinion, a good and allround vasculitis-specialist goes 'for the long term'.
He will balance the treatment-decisions he makes,
will look not only at syptoms but also at possible long-term-damage and base his treatment on that,
with an eye on the future.
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