onatreetop5 update

[onatreetop]

Hi all! Been awhile I know. Life is so time consuming with the kids and docs and work. I have had surgery on my right hand finally. In philadelphia I had a large tumor and 3 smaller removed 6 weeks ago now. I am at PT 3 days a week trying to get my hand back to somewhere near what it was before. The good news is no cancer. It is believed that after the biopsy results that it is RA. They say rare white blood cell mass was removed from bone and tendons. They are not saying wegeners. Meanwhile Soloway has increased the methotrexate to 25mgs and 32mgs of moderl. He is also trying to get the insurance to ok remacaid? iv trans that I know helped my mother alot. I havea few older wonderful people that I work for who have RA and take the same meds I have been on for sometime. It has helped them but I keep progressing, The left hand isnt far behind the right. It feels like about 2 monthes behind the right. Hope I dont have to do it again but if it gets large like the right I will have to or I wont be able to use it and be in to much pain again. Lots of snap crackle and pop coming from all the joints latlely.
Found out ffrom the prim doc I was taking to much of the water pill and had very low blood preasure from it. The urol doc put me on the max of 50mgs to help washout the kidney stones but almost killed me in the process. Went to the prim doc after bad head rushes and coming very close to passing out and he caught it thank goodness. It was the headrush that lasted almost a full 60 seconds that scared me to the prim doc. Now I am back down to 10mgs and 20mgs everyother day. Thats all of the highlights I can think of at the moment.Hope everyone is well and feeling better. wish there was more time in the day so I could chat more often.I could use an extra day in the month too. Like november 31st, 32nd and 33rd.

[Sangye]

Hi Onatreetop, it's nice to hear from you. Glad your surgery is over with. Is the Wegs staying under control? Have they decided it's RA on top of Wegs, or that it's all RA? I got a bit confused.

[elephant]

Hi Onatreetop, glad you shared. Come back when you can. How are you feeling?

[onatreetop]

They told me its not the wg . All the labs are good. I am tired most days but for good reason. work ,PT and the kids. I try to sit every once in a while. And try to eat lunch now usually soup. I actually started losing weigh when I started eating more.Weekends are harder because saturday is methotrexate day. Stomach is not good for a couple days and very tired and weak also. I feel more on this than I did onthe cytx.
The last time I had my lungs checked there was 1 tiny nod. in each lung. So theres that and the cardio doc checked my colestr. and the total is good but the tri s are 360. A bit high. The othro surg said he had to remove quite a bt of bone to get it all but that the arthr. was bad in the finger too. The pain can be bad at times but i get through it somehow.

[elephant]

Onatreetop, your lung nodules shrunk? Hope those lung nodules strink! Sounds like your hanging onatreetop. Let us know how things go.

[onatreetop]

I am always on the tree top looking for answers and keeping watch. The noddles were gone actually. there were 7 in the right lung when I was dx'd in june of 2009. That and the blocked arch arts in both hands.which opened also. so the 2 come backs arent a good sign and the tumors in my hands had me scared badly. I am not convenced that it is' nt the WG. Not yet. will let you know whats up as it happens Hope everyone has a great turkey day.