Originally Posted by
Gator
I have a mild case of WG. What happens if you get a flair up, in terms of what meds do they put you on if you went from Cytoxins (200mg) to Imuran for 6 months and got a flair up? Do you go back on cytoxins or can you get by with prednisone on your 1st relapse/flair up?
I stopped cytoxin in Jan. The last couple days I had pain in one of my eyes for maybe 5 mins at a time for a couple times. Not as bad as before the meds, but I hope it's nothing bc I don't get my blood/urine tested in a month. So now I'm thinking maybe I should push up that date. But also in the last couple months I started having to rinse my nose out 2 and sometimes 3 times a day when in Jan it was once (or sometimes twice for fun). Though we just had a lot of pollen in that time.
I know these are questions for my Dr but also good general Qs for the weekend.
And I don't see my Dr for a while.
Well, things got worse. On (last) Friday the all too familiar joint pain started in both ankles and a lesser extent the knees, mostly in the 1st hour awake in the morning (though I have been taking advil the last couple days and it has not hurt my joints since Monday; also bc I became sedentary). To add to the joint pain, I'm now having what I believe is a sinus infection (feels like a head cold too at times), which really got bad after I went to the ER on Monday (I went to the ER bc I was telling my Dr about the joint pain and sinus changes (blood, ect in mucous) and he said to go since I was out of town).
I see my Dr tomorrow, at 3:30pm. To this point I have been reacting very well to each new stage in the treatment, but I am concerned I will be put on a strong medicine that may not be necessary. I would greatly appreciate if anyone could help me come up with some questions. Earlier JanW said something that may be helpful, "The important questions to ask when you do have a flare is the doc's rationale for treating you with certain drugs."
Also, I understand that sinus infections are bad bc they are infections and our immune system is suppressed, but does anyone have any experience with having a sinus infection while on imuran (r just a sinus infection in general)? Is it like getting a cold where it will pass after a short time? Do they use prednisone and antiobiotics? Any info is good bc too this point I have been downplaying my disease to myself and now it again has my undivided attention. Please help.
PS, my blood and urine work came back all ok, but they opnly tested for things they could there i.e., white blood cells, ect; however they could not test things like C ANCA and P ANCA.
Last edited by Gator; 04-28-2011 at 04:40 PM.
dx AUG 2010 -sinuses and lungs
150 mg imuran, MWF bactrim
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