Hi, I just wanted to intro myself. My name is Andrea and I am not doing well right now. I copied my health problems into this post. I am seeing a rheumatolgist right now who is very good, and tells me I definitely have something going on. Her first thought is Wegeners, but she has not confirmed it yet. The ENT told me he thinks I have some sort of Connectine Tissue Disorder. At the end of the list here I will update my newest symptoms, any input or advice would be great! I am a 28 yr old mother of three.
v Pain and aching in joints
Involving knees, ankles, toes, elbows, wrists, knuckles
Sometimes all at once, sometimes just arms or legs
Ř First began as a teenager (15), would wake up crying in pain with horrible, excruciating pain in my knees and ankles.
Ř Over the years it seems the pain has had flair ups, has gotten extremely bad, and then subsides slowly over time.
Ř During the past year, the pain has been quite severe, leaving me not wanting to move.
Ways I’ve tried to ease the pain:
· Ibuprofen
· Hot Baths
· Heat Pads / Compresses
· Massages from husband
3 or 4 times over the years Dr. H has ordered blood tests to check for (inflammation / arthritis)
· Reason for the pain (No Answers)
During this last pregnancy pain was so bad, when trying to explain to husband, I stated I wish I could be “deboned” like a fish. I felt at that time, it would be better to be immobile then to be in so much pain.
Other unexplained health issues over the years:
Pin Dot Bruising (like tiny blood spots)
· Both in groups and all over body
· 1st time was 18 months all over body
· Then numerous times of little groupings over lifetime
· Again in September, all over body. (Dr. was not concerned)
Nasal Issues
· Constant runny nose, sinus pressure, sinus infections.
Eye Issues
· (left) eyes watery, teary
Chest Pain
· In 2005, one morning had sudden extreme chest pain on left side, clutched chest, collapsed and was briefly unconscious. Taken by ambulance to hospital. No explanation, only suspicion of mitral valve pre-lapse, which was never found in testing.
· August 2007 more chest pain still no explanation
· October 2008, sharp chest pains went on for about a week. Had a ECG and Chest X Ray, Heart and lungs looked good.
Throat Issues
· In the fall of 2002, I lost my voice for 6 weeks, no tests could find an infection or reason for it. My voice started to come back on its own when I was delivering my baby, so I never made it to the ENT.
· Since January 2008 throat has been clogged / obstructed
· Needs to be cleared 100 or more times a day
· Had a few episodes where it feels like it is closing and I have trouble getting air.
· Feels like my vocal chords are being blocked.
Most recently, (thurs-today Sun Nov30) I have intense burning pain all the way down my arms to my fingertips and extreme weakness. I cannot pick things up very well with my fingers or hold my baby easily. My throat seems to get worse every day, but the distressing thing is the ENT says he won't worry about it until or unless I have trouble swallowing or breathing! I really don't want to loose my voice again for an extended period of time. Also, my creatine levels were very elevated a couple of weeks ago. Thanks again, and I look forward to finding treatment for all of this.
Andrea
Bookmarks