Hey there, I was diagnosed in June of 2010 when i was 19.
Everything started happeneing in the summer of 09, i was becoming achy and tired. I shrugged it off not thinking anything of it and continued playing softball and going to school. Well during the fall/09 everything seemed to get worse, my joints started swelling up to where i would not be able to get up on the morning and get moving. After telling my college coach that i would not be continuing with softball, something ive been doing since i was 5. It was a hard thing to give up, but i felt it was the right thing to do. Well in april/10 i had gotten cellulitis in my left and right foot. After 2 trips to the er i was finally admitted and was told i had RA. After being diagnosed with RA for over a month i started getting sick in June. I was sick for a week straight, couldn't keep anything down to eat and was miserable. Then for about a week i was fine able to keep stuff down and was on some anti nausea medicine, then it started back up again, was taken down to the er and was told it was the stomach flu. Well went to the doctor the next day and was admitted into the hospital where i had a kidney biopsy and CT scan done where they finally figured out that i had Wegener's. It was/is really scary having something like this happen to me, the one thing Ive been asking is why me? I was always active and i loved to play softball, and having to stop absolutely killed me inside knowing i can never play again. Recently ive been having problems with blood clots in both of my legs and have 2 in my lungs. I had a green field filter put in through my carotid artery. Was doing great until last night where i believe im having more problems with blood clots again, been on cumadin for a little over a month now. Hopefully the doctors visit tomorrow goes great. Wish me luck.
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