Hi everybody! I'm new here and I 'd like to introduce myself. In the early summer of this year I was told I have 'Wegener's'. Till that moment I had never heard of this disease before.
The doctor who gave me the message showed me her computerscreen.
'Look here', she said, 'you have ANCA's to a level of 45.9. That is more than six times as much as in the blood of healthy people.'
Till that day I did'nt even know that people could have things called 'ANCA's' in their blood, and that there is something called 'PR3', but I am a fast learner, like all of you other 'Weggies', as I noticed by reading threads on this forum.
It's now several months later. I am on a medication that is called 'Bactrim' I suppose (in Europa - yes I live there- it 's got an other name) and I 'm doing quite well. I have found an other doctor who is a real Wegener's specialist (he is an immunologist as well as a nefrologist). Apart from fatigue en sometimes joint or muscle pain I don't have a lot of complaints right now, and I 'm happy with that.
I hope my condition will even get better in time and that I can eventually stop with my medication, but only time can tell.
I hope I can learn a lot here, and that I will find answers to my questions, and that I can find and give support here.
I am a woman, in my early fifties, I have a husband and a lovely daughter who is a student right now.
Wish you all the best with taking control over your disease, and finding the best help you can get!
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