Hey, maybe that might be the next big thing ...putting mushed up watermelons up our nose.
Thanks elephant. I went to a new doc in town today - she's a great young doctor who was here when I was prego, and left town to have her own baby and just got back - so that I have access to someone close to home who I like and trust (I can walk to the docs office from my house). I told her the whole story and asked if she could be my 'go to' - she took a bunch of notes, asked some great questions, and I now have someone I can bounce my self diagnosis off of. I put myself on 20mg of pred and was going to stay here for two three days, she suggested staying at 20 for a week, and then instead of going down back to 12.5 go to 15 while we're working out the immunosurpressant switch. I was thinking exactly the same thing in bed last night (going to 15 instead of 12.5 as that's when most of my symptoms popped up). So I'm happy with the doctors visit. I'm also happy to have someone close to home.
Thanks a ton for your help and support, I really don't know how I could have handled this crazy WG without all of you guys here. You have no idea how totally invaluable this group is to my life and mental well being.
We are always here for you Marta. Glad to hear that you have a good local GP.
How wonderful that you can walk to her office and talk to her about what's going on with you. That is why I like this forum, wonderful people and great support. Like Phil stated we are here for you!
Marta, I'm glad you found a go-to doc. I like the idea of lowering more slowly. I did not like the idea of jumping all the way to 20 mg because you had sinus symptoms. That's a huge jump. The comment about adrenals doing that when we get sick is not very accurate. For one, they don't produce anywhere near the levels of cortisone that we are on with pred. For another, they don't sustain the higher levels, just spike them. Like Elephant said, sinus activity can mean Wegs activity... keep an eye on things.
My Wegs doc only sees me every 3 months, including during my flare last year. I can get in sooner if I have to, but most of the time if I have concerns I email his office and he tells me what to do. Someday when things quiet down I'm sure he'll extend it to every 6 months and eventually annually.
Friday four hour sale at Zazzle. Hoodies 50%off sale. Code HOODIES4SALE.
FYI.
Nice items Marta. Impressed. Can you tell me what the wording is under the panda t shirt as I can't quite read it on the site. Thanks.
Hope your stay in hospital is coming to a sucessful end.
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