I was admitted to the hospital on Thursday afternoon after weeks of spiking fevers in the afternoon and morning with chills every evening. I had two trips to the ED once blood cultures, urine cultures with nothing growing. They admitted me with a dx of sepsis. My PCP has been throwing fits with all my specialists that something is wrong and after two visits last weeks to my Rheumy and my urologist I ended up in the ER after I developed really bad chills at work and a temp of 103.7 F. For a while I still felt strong underneath the fevers but have been weak as a cat for a few days now.
Infectious disease doc thinks that either it is a side effect of the Methotrexate (I took my last dose of Cytoxan on 8/20 and started my first dose of Methotrexate on 7/24). Or..with the mass production of kidney stones I have been having including 2 that obstructed with one requiring a stent and lithrotripsy, that some of the remaining stones are infected, which he says if the infection is inside the stone then it won't show in a blood culture unless the stone releases some of the bacteria at the right time.
Anyway....so here I am on 4.5 grams of Zosyn every 6 hours fluids running to try to flush the stones out. I have had to fight with the hospitalists who know nothing about Wegeners but tried to change all my medications around. The first doc thought it would be a good idea to stop everything and i had to get one of our Intensivists to come up to help him understand that he shouldn't mess with my meds. Then I had one decide to increase my beta blocker from 50 twice a day to 100 twice a day even though my pressure is running 104/60. Thank God the nurses here know me and tell me every change the hospitalists try to make so I can block them if needed.
I hope to be out soon, no appetite, which is not that bad because I have very loose stools if I eat anything (stool samples are negative also). My rheumy actually came to see me and seems to think that I am mass producing stones because of some hidden side effect of the time I was on Cytoxan????
Good news is that all my CT scans show negtive lung, kidney and sinus involvement so rheumy doesn't think Wegs is awake.
I hope all is well with you all.
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