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Hi Sue, welcome to the group and sorry you had to find us. I'm glad you got to the VF conference so early after diagnosis. I can sure understand where he's coming from in terms of the "old head on new body" feeling. Therapy is a very good idea. I'd be lost without it. All the stuff you come into Wegs carrying gets magnified by the stress of a chronic disease. Your son has already been through so much and his journey with Wegs is just beginning.
I shuddered reading that they had him on Naprosen. It's so damaging to the GI tract.
What dose of pred is he on at this point?
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