Finally getting off cytoxan ! and lowering preds

[DEE]

thanks guys
going for bloods done today will ask about the warfarin as i dont understand why ?
kept my diet the same i dont eat alot of things with high vit k anyway

[Fran]

Hi - Just to let you know I'm thinking of you and hoping you will feel much better soon.

[Sangye]

Dee, before you go, print out this article for them. It justifies why you need brand name Coumadin. Johns Hopkins: Prescription Drugs on generic drugs

I think they'd have a hard time arguing with something published by Johns Hopkins.

[Hammy8241]

kept my diet the same i dont eat alot of things with high vit k anyway [/QUOTE]

Cadbury.co.uk - Bassett's Jelly Babies - 215g Guide

Nope

[DEE]

Thanks Sangye will print off information , had bloods taken this pm will talk to gp when he rings about results .
Hammy not had any jelly babies for awhile as son has gone back to university and he the one that usually buy s them
having INR done again thurs morning beginning to feel like a pin cushion again
thanks everyone
ps had a mega preds day yesterday baked for whole of uk
hubby will be taking for packed lunch forever

[elephant]

So glad you cooked, hope you enjoyed your food. Thanks for the update Dee.

[DEE]

trying to be good had a sleep catch upday yesterday ! thought i would not sleep last night but i did
going to have a slow steady day today too , think i need to recharge the battery

[DEE]

finally found out why battery needed charging . now have a few more of wg symptoms back !!!!!!!!
went to wg consult thurs , he thinks imuran not holding things , blood results show raised inflamation markers and have blood and protein in urine again
he was presenting my case of wg to the doctors at the hospital fri morn and had invited all my consultants which he was having a meeting with afterwards
we have agreed to up imuran until he gets further tests back from the labs
i can still have asssessment and pre op done for cataract but just to see dentist about what needs doing just now
options we talked about
giving Imuran a little longer to work
look to using rhixamab (sp) injection
or to remove immune system completely and start again !
information over load setteling in
all adds upto two hospital ,two gp and two bloods appoints and a dentist appointment next week

[elephant]

Dee, I am here for you. Hope the increased Imuran will work! Take good care of yourself!

[Sangye]

Dee, I was wondering if they were considering rtx. I'm glad they're increasing the imuran and talking rtx if it doesn't work.

One suggestion: Write down the symptoms you started having the last couple weeks, when you weren't sure if it was Wegs or something else. Those can be good clues of a Wegs flare in the future. Write them down now while it's fresh in your mind. I always think I'll remember later, but with the constant flood of symptoms and problems, they get lost in the heap.