Finally getting off cytoxan ! and lowering preds

[Sangye]

Well, that's what we expected.... I'm sorry Cellcept didn't work for you, Dee. I hope imuran works great and you feel better soon. Get some rest.

[elephant]

Dee glad you taking soemthing else, Hope Imruan works for you. The cataract surgery went well, just blurry.

[jola57]

I hope yeour eyes improve soon elephant.
Dee, I have never been offerec anything other than cytox and mtx. Good luck with Imuran,

[elephant]

Thanks Jolanta, my left eye has improved, I am having the right eye done in three weeks.

[DEE]

Elephant you will have had both your eyes done just about the time i go for my first appointment for mine
cant imagin what our post will be like when we both can see what we are doing

[DEE]

Jolanta thanks will know more on wednesday have already tried mxt didnt work
wg consult said not many peope react against cellcept but it happens to me always one step forward and several back

[elephant]

I really need to get some reading glasses. I have imbalance going on with the eye's one good eye...one really bad eye. Dee soon enough you will be done with the square dance and move straight forward!

[DEE]

ok bacck home again
starting 100gm Imuran today to increase to 150gm in three weeks
tappering preds from 20mg to 17.25mg
asked about having eye op on these meds he said it would be ok and would speak to consult before op was done
croaky throat wait and see if its meds causing it ,if not will contact ENT.within the week
bloods looking better but going to have done every other week
so fingers crossed , things got to be ok wg consult going to a conference in turkey soon but said sec can contact by e mail if anything needs sorting
so all in all a good day

[Sangye]

I hope the imuran works great for you, Dee.

[DEE]

thanks Sangye
can but try ! he said he had spoke to someone about failing on cellcept not many people do ,so i told him about lisamaria who has the opposite problem
he said the goes to cionfirm how individual we are
he said he got patient that have been on Imuran for tens of years with no prob but the said to my friend but he wont say this to me ,opposite
as so far have always gone and done the opposite
so glad to be tappering preds , he said we would be doing this very slowly