Hi all. My name is Sam...i was told on Monday that i have Weg and have to see a specialist.

It seems funny to me how different everyone's story is...so here is mine.

I was first told i had Lupus 3 years ago. But i'm guessing that diagnosis was wrong if i now have this.

I came here by way of ENT, which started 3 years ago after i had a big nose bleed, out of no where. Got referred to the hospital and had tests, nothing came back...bit odd. So my consultant decided to do a biopsy to see if anything was hiding in my nose. Tests came back inconclusive. After that i was told "you only see the consultant once" and was then passed on from person to person for 2 years and was told it was my weight, or it was just something i had to live with. I may be overweight but i think everyone can agree a nose doesnt hold a significant amount of that weight!

So my nose condition has moved on from nose bleeds to other things...which i wont go into at this stage...suffice to say i am well aware of my nose on a daily basis, and my sinuses and i also have Neuralgia.

I digress...so after 3 years i go back to my normal 3 month routine appointment in May and get told i have a hole in my nose in my septum and my nose is collapsing.

So i have another biopsy and blood work...and well here i am.