Thanks for the advice, Kim! Would you mind sharing the name of your weg specialist? My rheumy is within 10 minutes of home which is very helpful when I make visits so often. I was considering seeing a specialist in Boston (Dr. Paul Monach at Boston University) and participating in a research study that he is conducting. Have you heard of him?

VCRC Genetic Repository One-Time DNA Study
Longitudinal Protocol for Wegener's Granulomatosis and Microscopic Polyangiitis