John started having more complications this week. Saturday he had his first "R" infusion. Tuesday he started feeling weaker. Wednesday was a little worse. Thursday even worse. When I got in from work he informed me that he had upset stomach all day. I took his temp and it was 102. I called his nephrologist and they said to come back to chapel hill. We are now here. When he arrives his BP was 180/106 with a pulse of 124. They did an EKG and an ultrasound of the heart. It is not working as hard as it should and enzymes are really high. They believe the heart has now been effected. We are currently waiting on the cardiologist. His hemoglobin level is 6.5 and his white blood count is crazy high (but that could be due to his meds). He hit his toe on the bed a week ago, all of his toes are now completely black and lumpy?!? They seem really concerned about that. His hands and feet have lost all color. He is coughing a lot but scans show no signs of pneumonia.
Has anyone else had the heart involvement?
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