I am looking for advice from you wise folks. My wegeners hit my ears mainly and caused hearing and minor lung damage before diagnosis. In last almost 2 years I have been on high dose of pred and methotrexate and started rituxin in October and my liver numbers took my meth taper away and went cold turkey. My "good" ear has felt full since holidays but I couldn't get in w ear doc until last week. In meantime I saw rheumy and had blood work. Today I learned my inflammation is "up" I finally see ear Dr tomorrow after he cancelled on me...I don't think he will know what to do. Could this mean I need to go up on pred? At 5 and finally losing a few pounds. Or could this mean I need criticism at 4 months instead of 6? After feeling pretty good all of my joints hurt and that hasn't happened before. Thank you.
Susan diagnosed March 2012
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