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  1. #1
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    Default Re: New member

    Quote Originally Posted by Pete View Post
    Bon giorno!!?

    Welcome to the forum. Feel free to ask questions and share your experiences with our disease. I hope your breathing improves soon.
    Thank you for answering me!im scared if these noduls can come back.three years ago i have made a scanner and the result was fine,the lungs were recuperated.all these period i have done just test blood and urine.im so scared of the result.


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  2. #2
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    Default Re: New member

    Hello Isi,

    With proper treatment, the nodules and shortness of breath gradually disappear. When I was first diagnosed, I had cavitations and nodules which caused me to have shortness of breath. I got relief from inhaled steroids.

    Do you see a Vasculitis specialist for treatment? There is a list of specialists on the Vasculitis Foundation website. If none are close to where you live, perhaps your local doctor can consult with one.
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

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  4. #3
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    Default Re: New member

    Quote Originally Posted by Pete View Post
    Hello Isi,

    With proper treatment, the nodules and shortness of breath gradually disappear. When I was first diagnosed, I had cavitations and nodules which caused me to have shortness of breath. I got relief from inhaled steroids.

    Do you see a Vasculitis specialist for treatment? There is a list of specialists on the Vasculitis Foundation website. If none are close to where you live, perhaps your local doctor can consult with one.
    All these period i have been on treatment.the analysis of blood going well and the doctors reduce the predisone on 2,5.at first when i was diagnosticated i didnt have problems with breathing.i have them now.im so scared if everything is coming back


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  5. #4
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    Default Re: New member

    Welcome to the forum isi. Where are you from ? What language do you speak ?

    Dont be afraid, even if the nodules came back, you can get a treatment for them and get well.

    It might be that you dont breath well not only because of your lungs, but also because of anxiety. You can check it, if you distract your attention from your health issues, and try to do something fun, like listenning to good music or watching a good movie, and then to check if your breathing got better when you were not worried.

    Hang in there and keep on writing. You are not alone. We understand how it feels.
    Last edited by Alysia; 10-21-2017 at 09:33 PM.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

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