Originally Posted by
djasher2000
My name is Joey and I've already posted in intro. I wanted to ask a couple of questions here. Last week I was in the emergency room and have a possible WG diagnosis. The doctors are pretty sure I have it they just need to do one more test to confirm. My first frustration is that my rheumy I'd making me wait 6 weeks to see her. She says that it is the soonest she can see me. I don't understand. If I am so sick (which I am) why are they making me wait. I understand that ultimately the doctor has a business but I thought they were in the business of patient care as well. Secondly my family, more importantly my husband and mother, are in denial that I'm sick. My husband wants me to go back to work and while in the pulmonologist office last week she asked the doctor "can't this all be an allergy?". It made me so mad. I thought "do you know how stupid you sound?". I won't take her with me to the doctor again. My husband is a bit more serious since this possible diagnosis but he still looks at me like I'm making all of this up. I also have Lupus RA and Sjögrens. Is there any advice you all have for dealing w family in denial? I know I have to make my health a priority.
When it comes to Wegeners or any other illness or injury, its always you first!
I had to complain about ailments for nearly 5 years only to have a full blown flare before they found my Wegs.
I even got to a point where maybe all these issue I was having was all in my head and was ready to start shutting down and ignore health problems because it felt like no one believed me when I explained some symptoms that I had no idea what it was!
Yes, Drs can be hard to get into see with in a week especially if they're title has a field of specialty behind their name!
I have found that I can go to my family Dr and through her, she can refer me and I get in with in a couple days!
Just a piece of advice, have a family Dr in the fold as part of your wegs team and make sure they shared info from all Drs that are involved in your treatment! My Rheumatologist advised me on this when my first Pulmo left abruptly and wanted to make sure that I have a permanent one to the group. My first one was here on a Visa and left a week early and I didn't know til I went to my Nephro appt. and I got lucky and got to see one of the new pulmos in that office but he was only going to be around for a year on a Visa and the RA said that we need people on the team that can be in the know if I should relapse and they will need to hit the ground running if I run into complications! He stressed that there would be no time to bring a new Pulmonary Dr up to speed every six months or so!
Nobody knows how we got to the top of the hill. But since were on the way down, we might as well enjoy the ride!
James Taylor, Secret Of Life
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