Hi,
My healthy, athletic, energetic 16 year old daughter was just diagnosed with Wegener's right before New Year's. She hadn't been feeling well all fall. I kept taking her to the pediatrician, and finally after a trip to the ER and many, many tests, she came up positive for Lyme Disease. She took the meds, and still wasn't feeling well. Finally, we took her into Boston where more tests showed "vascular inflamation". I actually had to pull her from her track meet and get her admitted to the hospital. We spent 5 days in the hospital getting a blood transfusion, 3 days of steroids, rituxamab, any cytoxin. What a whirlwind. She is back to school, running, dancing, and still getting daily steroids, and weekly infusions. I can only hope this was caught early and she will have total remission. I can't believe how things turn so quickly.
This forum has been so helpful to me. It is comforting knowing there are others going through the same thing. Thank you. Ann
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