Quote Originally Posted by Masha View Post
Hi Donna,
My doctor was part of the study and research on frequency and amount of Rituxan to be effective .
They found that large doses less frequently are just as effective as smaller more often. My previous doctor had me getting 500 mg. 4 consecutive weeks 3 times a year. My current doctor has me getting 1000 mg every six months. Attempting to get off prednisone has proven to be a disaster for me. Lower than 8 mg and my body rebels, sinus, eyes, mouth and of course the legs.
I also take Bactrim 3 times a week. That has proven to be a great help with sinus infections.
I have no experience with cellcept.
Masha


Hi Marsha
I was just diagnosed in May with wegeners of sinus. I started on prednisone, rituxan x2 in June. When my prednisone got down to 8 mg I had a flare. My prednisone went back to 10mg and just received another 2 doses of rituxan. I’m also on bactrim every other day, budesonide irrigation’s 2 x per day, prolia injections every 6 months. I see my Rheumatologist next week to discuss what’s next. I was hoping to get off prednisone but after reading so many others journeys I think I will be on it for more months.
ive tolerated rituxan infusion ok, just some fatigue.
Joan