Welcome, Ilias,

I don't know what I can add except that your situation sounds so familiar, yet different, as is often the case with WG/GPA. I started with a big ear infection at age 58, which I had never had in my life. That was followed by continuing sinus involvement chalked up to allergies, and hearing loss. I took allergy shots for about a year, which seemed to help a little. But it was another case of actually a good doc, my ENT, totally missing the possibility, maybe because, though experienced, he had never had a case of WG, though he knew what it was and ended up getting the diagnosis by nasal biopsy when the time came. Finally it went into my lungs and I was diagnosed and started treatment. But I was only in the hospital overnight, nothing like what you went through! I was very sick and if not caught when it was, feel I would have been in grave danger. Treatment with cyclophosphomide and prednisone got the lung issues under control, and the sinus stuff dragged on longer but I was eventually switched to methotrexate, which I still take, and have never needed RTX. I did have hearing loss in both ears which improved quite a bit but then one ear was reinfected and now is deaf, while I wear an aid in the other. Due to permanent lung damage and continued shortness of breath at times, I must be very careful about Covid, as all of us must. As for the itching, I have it in my scalp, and don't feel it's WG related, but I do have some bad cramps in my legs at night, which can be helped by magnesium, so I am intrigued at the mention of magnesium spray by @Masha, I have a lot of trouble with excess tears and light mucus in eyes, maybe not draining well into the tear ducts, and some itchiness there, but not major eye problems like some have had. I'm so sorry about your loss of vision in one eye. I do have double vision which is probably WG related, due to bone erosion around the eye socket, though that is not for sure, but was speculated by my eye doc and ENT after an MRI. Anyway, you have come to the right place, and the discussions here are a little more personal and educated than on some of the Facebook groups, which can become a free-for-all with a wandering focus. I am on some of those, though. My forum use is less often lately, as I'm distracted by other things, but I sure remember what a saving grace it was when I was first diagnosed. Without it, I would have been lost and alone. I look forward to hearing how things go for you in the near and continuing future.