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Thanks I'll try it. I've tried increasing the dose age of Ibrouphfen to what they told me I could take last time I was in the ER, but that didn't really help.
Yes this my appointment is with a rheumatologist at the university hospital. I've already seen a local rheumatologist, but he didn't know how to help. This will be the 15th doctor I've seen so hopefully, i should get closer to a diagnosis.
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Ncr1980: I just replied to another thread you had posted, about ear pain and eye swelling. If you can see a vasculitis specialist, ideally at one of the top clinics, they will want to rule out inflammation in the nerve bundle that passes through the middle of the ear. I had horrible facial pain a year ago, before diagnosis - took short term prednisone that helpled with the pain. But after I was off the prednisone, developed Bell's palsy (facial paralysis) on the left side and later diagnosed with Wegner's GPA. Although officially diagnosed with limited GPA (no kidney involvement), the specialist felt that the my case was severe because the nerve might have been affected by the disease.
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