Hi Piggy,
My wife (of 44 years) has been very helpful as we got the disease under control. She accompanied me to doctors appointments when I was really sick. We developed a list of questions before we saw the doc (still do), and she took notes on answers and follow ups. She checks in on this forum occasionally and that helps her stay informed.
This disease can be pretty scary when you're flaring and having symptoms. I encourage you to have your hubby go with you on doctor visits so he can ask questions, express his concerns, and learn more about how he can help you cope. With proper treatment, you can have a nearly normal life.
Pete
dx 1/11
"Every day is a good day. Some are better than others." - unknown
"Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD
Bookmarks