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Hi Michelle. I ended up going to the Epworth Private Emergency rooms and they admitted me to the Epworth in Richmond where I have been for nearly 4 weeks hoping to go home on Tuesday. I have found them excellent and very thorough and they certainly engaged quite a number of specialists. Afterwards I will be under the care of the main Rheumatologist who diagnosed me here. But I guess I am not yet sure of all that happens next. He has an arrangement with Melbourne Pathology to do the regular blood tests and will see me initially frequently then if I do go into remission less frequently. He is hoping to drop the Pred altogether once the Methotrexate kicks in and hopefully that will reverse the diabetes. I am also on Folic Acid 2x a week. And I have been on Somac which is an acid reflux tablet for several years due to the chronic ulcers and the Barrett's Oesophagus. However I noticed recently have been getting some spasms / indigestion which is like a tightening in the chest so that was probably getting used to the Prednisolone. I take Buscopan and that seems to resolve it.
I will try and find the Facebook group. Is there a link to it?
Kind Regards, Inge
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we will keep our fingers crossed for you.
I will have to find out now if I need to more regularly attend my Ophthalmologist and Gastroenterologist and of course the ENT specialist or if I simply continue focusing on the treatment for Wegener's and let that one heal all the other areas? So much to learn!!
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