Lung Flare

[Dorothea]

This time Wegeners didn't go after my kidneys, they do believe it is Wegeners. I was supposed to start Retuxin treatments before this happened, that will be the next step!! Thank you for your input!! Have a nice holiday!

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[me2]

When I first had WG it was over 40 years ago. Joints, sinus , kidneys etc- but NO lung involvement. I was in the hospital for several weeks waiting for CTX to kick in as I was in very bad shape.
After twenty years of drug free remission the WG returned. This time NO kidney involvement and lots in the airways- lungs and trachea. lt is a mysterious disease.

The usual protocol , I think , is to have Rituxan every six months. This does not work for some people as they relapse ahead of schedule. Some people, like myself, do it on a 4 or 5 month schedule.