KHi my name is Breanna Horton I am live Terre Haute, IN, I just turned 22 and just got married! I got sick when I was 17 I went from 135 pounds to 117 in two months. I had eye involvement and nose involvement were my first symptoms that I knew of. My PCP diagnosed me with also ulcercolitis which is what my father has and is an autoimmune disorder a few weeks after he diagnosed me I had a colonoscopy, The doctor who did my colonoscopy told my mother that my colon was perfectly healthy and he couldn't understand why the doctor has diagnosed me with ulcerative colitis and ordered for a colonoscopy when I had no symptoms of that disease.
Found out after going to many doctors who told me over and over there was nothing wrong with me that there was more going on then I knew. I finally requested my medical records and went to see a new PCP, that told me I needed to see an eye specialist, who then referred me to a Rheumatologist, he then informed me that my labs from my PCP that had been my doctor since I was 11 showed that I had blood in my urine for 2 1/2 years! The Rheuatologist told me my labs were really abnormal, and he wanted me to see a nephrologist for my kidneys. The nephrologist wanted a kidney biopsy and by then I was close to my losing my mind, I jump on it so fast. They did the biopsy a few days later and the next week the doctor called to inform me that I have what is called (wegeners Granulomatosis a form of vasculitis!
At that point I felt like a weight has been lifted and we made the journey back to Indianapolis to come up with a treatment plan, which ended up being Rituxan prednisone and Imuran, sulfameth is also called Bactrim. My boyfriend who is now my husband drove me up to the hospital in Indy to start my first round of Rituxan before they could even get the reduction started I had an allergic reaction and they had to stop, we decided on Rituxan because it was safer for me and wouldn't hurt my chances of having children later on.
I was so upset to find out that I was going to have to start Cytoxan One of the nurses at the hospital before I left heard me over talking with my boyfriend about Cytoxan and suggested a shot called Lupron which would shut my ovaries down for six monthas of having children. I wasn't prepared for the symptoms of the Lupron added with the symptoms of the chemotherapy.
I am happy to say it's been four years and I have been in remission for three months. I have have a very common upper respiratory infection that I get about twice a year. I am currently on Imuran and Bactrim for routine therapy treatment my biggest problem now is not being able to breathe through my nose like I used to and want to know if anyone else has had this issue and what they've done Anything is greatly appreciated thanks and God bless.
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