I guess you could say i'm kinda doing a survey...altho in reality i think we could all be encouraged by seeing different aspects of struggle that this disease brings. I know for me in the last 2 months,realizing i'm not alone has been my biggest source of strength-thanks to all of you. So i know behind every screen there is a person with a past,AND a future. Just wondering your thoughts. How has wegeners impacted your life? for better or worse. It does come with both, at least for me. I was dxed young (16) and am now 30. I posted earlier that i'm not sure how i would've dealt with wegeners if i had already been established in my life. I learned to accept it as "me". I did'nt know another way. Yet, i've been so blessed. Having children when the dr tells you that you probably never will...WOW! I guess because this one feels like MY biggest blessing despite my wegs, it also carries the heaviest burden for me. Only in this aspect and i'm being very vulnorable. With tears in my eyes. I'm afraid of leaving my children without a mama someday. When they are too young to understand. They are 8 and 4. I begged God at thier birth to let me stay long enough that they remember me. Well....now i just want to stay long enough to remember thier children. Funny how that works,huh? WE are never satisfied are we ? This is something i think of alot...anyone else like me ? My children have learned at a very young age what sickness is. Visited me in a coma in the hospital ,altho they would'nt remember. They have learned to wash dishes when mama's sick...i guess it makes them stronger. My oldest son prays for me to get better. This is just the life they are use to. I'm rambling. Prednisone keeping me awake tonite so i decided to hang out with you all I dont want to be morbid or pesamistic (altho i do have that rep) -i more feel like we have to be realistic. So to end on that note-i have wegeners, BUT i'm planning to watch my grandchildren get married someday
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