So after 5.5 years I can finally report that I am off the pred It fought me right upto the end and on my final reduction , I thought it was gonna win. But two weeks in, the side effects have gone. I have only been able to achieve this due to the Rtx.
I found that when I was having an armful every 6 months, I could reduce the pred down to 2mg but as the befefits waned, I would have to increase again. Thanks to Geoff and Dr Jayne, I was approved to have Rtx every 4 months instead. This has stopped the dip and allowed me to get my life back to near normal. It has to be mentioned that I have a long way to get back to anywhere near how I was pre WG but am going slowly in the right direction. The next test will be in 16 monthe when my course of Rtx finishes. Will I be in remission or will it come back again? All I know is I am gonna enjoy it while it lasts.
I don't come her now very often. It's not that I don't feel for all of you who are starting the WG journey, because I do, but more because I made some special friends when I was learning all about the illness - some are in remission, some have died, some I am still in contact with - some are just MAD but they are part of me.
I sure you to will create your own group of friends get great advice and in time understand and not be scared of WG. I wish you all well.
So, if luck is with me my next post will be in 18 months after I'm off all drugs - if earlier then you know ...........
Arrrgggg! Its got me..... or is it I got it?
Good luck Hammy.. and congrats for being able to get off the pred. I hope all goes well for you and you are able to get into a drug free remission ... but you don't have to stay away.
Life isn't about how you survive the storm, but how to dance in the rain !
Can't wait for the good news in eighteen months Hammy. How to make a thread a "best seller?" See "Sangye" in a reply. Hope you are well my friend.
Dale
Dx Aug, 2009 Remission June 2010 until 8/1/2014
LOL I occasionally take a peek just to make sure you two are behaving. I'm looking at you, Hammy and Dale.
Congrats Hammy
~ Bob
Congratulations Paul, I'm sure Mr Choos had something to do with your release from the clutches of Pred!!
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