Originally Posted by
annekat
I'm glad you are getting these responses from others in SWFL. I am at the extreme diagonal other end of the US in Washington state, so can't help much with docs for you. But I'm a believer that there are good docs, capable of treating WG competently, in a number of places, who may not be as well known as those at the more well-known vasculitis clinics. It would be great if you could find one that you didn't have to travel as far to see. And some of the top specialists are available for your doc to consult with for free at this link:
VF Medical Consultants . And here is a new site I'm sharing on the forum for the first time, which lists docs by state, as recommended by patients:
Vasculitis Journey of Hope - United States . Those are the links for doctors, but both sites are worth checking out thoroughly.
The "expert facilities" train lots of residents each year and will generally have the name of some of their graduates who are closer to you for followup care.
Knowledge is power! Wisdom is using it to make good decisions!
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