Oh Alysia and Phil! Keep fighting this newest downturn. You are both so strong. God bless you both! I am thinking of you all day, every day.
Jacquie (aka Lifelong Booknut)
Updated status: "Honorary Weggie"
Wishing you both only the very best of health and happiness. Safe travels Alysia and your presence will be the best medicine for Phil.
I am a strong person, but every now and then I also need someone to take my hand & say everything will be alright....
So I go away for awhile and the whole cart gets upturned. Phil, what the heck?? Unless there's a pool table in the ICU you have no business being there. Get yourself together. Find the fight in you. To quote the Dalai Lama (wrong religion for you, but still ) "Never give up. No matter what is going on, never give up." You got that? Too many people love you and need you in this world. You've got a gal flying from Israel for Pete's sake. I mean dude, come on.
Keep Smiling
Michelle
Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS
Keep on fighting Phil! We are all praying for you.
Alysia I hope you have a very safe trip.
~ Bob
Did Alysia ever make it to Phil's side? Has anyone heard anything today? Phil your an inspiration to a lot of people in here , praying for you.
Sent from my SAMSUNG-SGH-I727 using Tapatalk 2
She just got there a little while ago. Stay tuned...
Pete
dx 1/11
"Every day is a good day. Some are better than others." - unknown
"Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD
Thanks so much every one. I love you. Thanks for the laugh Hammy and Sangye. I came here at about 2 oclock at night. 26 hours trip. Worth it to be back to my sweetie. He is very sweet but not getting better yet. Still in ICU. The docs are not sure if he is not getting better because of the infection, the WG or both. They are cautious with more meds. He also need to fight the infection. So they stopped the imuran. He still on pred 80 mg. No more rtx for now. AND they decided to do plasma exchange. Does any one knows about it ? And please bring some encouraging info.... he will start it tomorow. Right now they are putting the line for it. I am outside the room. The man is a super hero. We know that. Please continue to pray. Thank you so much. God bless you.
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Alysia
dx 2008
Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
"You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.
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