Glad to be diagnosed

[Alysia]

ongoing Gab, in fact during my latest Clinic visit I was asked to take part in another trial, this time about the long term effect of Retuximub.

Its always very exciting to hear about ongoing research into our illness and to hold out hope for a breakthrough in its treatment.

@Geoff can you please vote on the Poll of rtx efficiency (if you didnt vote yet) ?

[Gab122]

@Geoff can you please vote on the Poll of rtx efficiency (if you didnt vote yet) ?

Speaking of voting.... @Geoff Could you also come over and run for president. We need someone else to vote for on Tues.

[Geoff]

3 years on and what can I say??.. RTX is doing its stuff for me, yes I have some bad times but seriously no complaints...for the life of me I cannot get Pred free after 11 years but it doesn't bother me anymore... its just a number.. Just returned home from a visit to the Endocrine Unit at Addenbrookes, Cambridge, UK where they have been monitoring my adrenal glands. I'm delighted to say that 11 years of continuous pred haven't sent them to sleep!!.. the glands that is and not the staff!!...I live a full life now that I am retired at 68 years of age, I get a full work out looking after my 3 granddaughters aged 4 to 7 years.. phew! I know I am lucky but have always adopted a full on positive attitude as long standing members of this amazing Forum know only too well..
I spent so much time in the early days on this excellent Forum chatting to fellow Weggies and fact finding, there is no equal..I wish you all the very best of health and love..xx

[freakyschizogirl]

Geoff, I was at Adds today! Clinic 12 for me. Good to hear how you're doing.

[Geoff]

Like ships in the night Sam!!..great to speak with you the other day, hope all is going well.
I'm in Clinic 12 on the 15th..hope the Prof is up to speed and hopefully ironed his shirt!!

[Geoff]

Hi Pete!..no wonder you look so well with those 3 scallywags to give you the run around! Having grandchildren is like working out in the gym every day!

Hello Anne, yes getting your adrenal glands tested is a reassuring thing; good luck for later this month!..the dark green spoon rest is still in pride of place in our kitchen!

Thank you for the kind words Alysia, I don't have the answers to your questions but could inquire later this month when I am back at Addenbrookes...only maintenance meds is 5mg of pred!..I hope all is well with you my dear friend.

[mishb]

Wonderful to hear from you Geoff.
So glad that everything is going so well.

If ever you get back to Oz, let us know, we will be in for a catch up

I have missed your taunting over the cricket

Don't be a stranger, you hear

[Pete]

@Geoff

Hey Stranger!! Glad to hear all is well with you!!