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  1. #1
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    Quote Originally Posted by Pete View Post
    Hello Aneinu,

    Welcome to the Forum. Hope we continue to be a valuable resource to you. Feel free to ask questions (even those you think are stupid), vent your frustrations, and celebrate progress.

    Hope your son makes good progress with rituximab. What other meds is he taking? Where are you located? Where is your son being treated?

    Best to you both!
    Thank you.
    We are in Cleveland.
    He is taking the steroids solu-medrol as well.
    I was being pushed to transfer him to another hospital, but firstly, I was confident with the doctors, staff and care of the one he was in, and secondly, I think the only alternative medication was the cyclophosmodine, and that didn't seem to be the correct treatment for him.
    They are looking at his craentine count in his kidneys, but they are not overly concerned.
    Thank your again.

    Sent from my SM-G920V using Tapatalk

  2. #2
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    If you haven't done it already, you may want to check the Center for Vasculitis Care & Research at Cleveland Clinic. I see Dr Alexandra Villa Forte there. She's great. Some other folks see Dr Carol Langford who is also excellent.
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

  3. #3
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    Quote Originally Posted by Pete View Post
    If you haven't done it already, you may want to check the Center for Vasculitis Care & Research at Cleveland Clinic. I see Dr Alexandra Villa Forte there. She's great. Some other folks see Dr Carol Langford who is also excellent.
    I hear you.
    I spent the whole day researching that.
    I was able to contact one, and for the time being, I am comfortable with our decision.
    Thank you again.

    Sent from my SM-G920V using Tapatalk

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