Had my regularly scheduled follow up visit today with my rheumy, who was very interested to hear what went on at the conference. We had an interesting dialogue, especially in regards to long-term immunosuppression. I can tell that he's not a total buyer of the 'remission is random' theory, and frankly he raises a good point about this all being a moving target because any population group of wegs patients is so vanishingly small. He did agree that the relapse rate, in his experience, is much higher than websites would have you believe (he thinks it's not a coin toss -- basically most of his patients relapse at least once).
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